Tex Star Detail
Formerly TexasTB
Many of you know me, and some know me personally.
I come off as a smart ass sometimes, and generally, just like to have fun....
I need to be serious right now, and ask that you read this...
Some of you know, my 4 year old Son, Kobe, was diagnosed with cancer when he was 17 months old. (Neuroblastoma Stage IV)
A long story short......
He was diagnosed with asthma, but they found it to be a tumor collapsing his lung. The tumor was as large as his heart. It collapsed his lung, grew blood vessels to his heart, grew into his spine, and attached itself to his ribs. He had 3 ribs shaven/half removed. He was given less than a 20% chance of survival. During his last chemo or radiation, sorry, I cannot remember off the top of my head on which it was, he was put into PICU with a 105* fever for 3-4 days.
The cancer spread to his bones as well.
He went through several rounds of Chemotherapy, Radiation, and had 2 stem cell transplants.
Fast forward.........
We had many scares and sleepless nights. The fact that the cancer COULD come back. We have been to the local Hospital here, Texas Childrens in Houston, and to NYC for treatment.
He has been in remission for going on 2 years...He is and still is my little trooper. Stronger than I, and I look UP TO HIM.
Hospital check-ups are normal for us. He will have to go for the rest of his life.
All tests have been normal, up until last month.
He had an MRI, CT, and Bone Scan done, as regularly scheduled. The bone scan showed his skeleton and a very dark spot on his pelvic bone. Docs, said it may be cancer, may be a bruised bone? But they were not ruling out cancer at all. As the chemo he had could actually cause cancer. We are hoping this is not a relapse, as this would mean he would have a slim chance. The Chemo he had years ago was experimental, and the strongest at the time. The good thing though, if this is something, they caught it early.
It is back to Houston to the Hospital in the Morning. My wife and kids are already there. I had some jobs I needed to finish up today, so i opted to stay and finish. His appointments are not until tomorrow and Thursday. He will be having an MIBG scan to see exactly what it is....
So, before I make this long, I am freaking out, and would like thoughts and prayers for my Son, Kobe.......
Thanks for reading.....
I come off as a smart ass sometimes, and generally, just like to have fun....
I need to be serious right now, and ask that you read this...
Some of you know, my 4 year old Son, Kobe, was diagnosed with cancer when he was 17 months old. (Neuroblastoma Stage IV)
A long story short......
He was diagnosed with asthma, but they found it to be a tumor collapsing his lung. The tumor was as large as his heart. It collapsed his lung, grew blood vessels to his heart, grew into his spine, and attached itself to his ribs. He had 3 ribs shaven/half removed. He was given less than a 20% chance of survival. During his last chemo or radiation, sorry, I cannot remember off the top of my head on which it was, he was put into PICU with a 105* fever for 3-4 days.
The cancer spread to his bones as well.
He went through several rounds of Chemotherapy, Radiation, and had 2 stem cell transplants.
Fast forward.........
We had many scares and sleepless nights. The fact that the cancer COULD come back. We have been to the local Hospital here, Texas Childrens in Houston, and to NYC for treatment.
He has been in remission for going on 2 years...He is and still is my little trooper. Stronger than I, and I look UP TO HIM.
Hospital check-ups are normal for us. He will have to go for the rest of his life.
All tests have been normal, up until last month.
He had an MRI, CT, and Bone Scan done, as regularly scheduled. The bone scan showed his skeleton and a very dark spot on his pelvic bone. Docs, said it may be cancer, may be a bruised bone? But they were not ruling out cancer at all. As the chemo he had could actually cause cancer. We are hoping this is not a relapse, as this would mean he would have a slim chance. The Chemo he had years ago was experimental, and the strongest at the time. The good thing though, if this is something, they caught it early.
It is back to Houston to the Hospital in the Morning. My wife and kids are already there. I had some jobs I needed to finish up today, so i opted to stay and finish. His appointments are not until tomorrow and Thursday. He will be having an MIBG scan to see exactly what it is....
So, before I make this long, I am freaking out, and would like thoughts and prayers for my Son, Kobe.......


Thanks for reading.....
